There are many stories around epilepsy but at the heart is the person living with epilepsy and their families. These are the stories of our clients who have generously and courageously agreed to share their lives with you.
Samuel has a partial duplication of chromosome 20, everyone is pretty sure that this is causing his seizures.
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Nyah was born with Sturge Weber syndrome, it usually presents with a port wine birthmark and neurological complications. Seizures, often unpredictable and prolonged usually begin early in life.
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After a long journey with epilepsy, including surgery, Ann Rendell is now seizure-free and passionate about creating awareness of epilepsy to lessen the stigma surrounding the condition.
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Cassie Sennett has had epilepsy since she was eight or nine. After much trial and error with medication, she has been seizure free for three years and has even had a baby.
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Rebecca Talbot started life with epilepsy, experiencing febrile convulsions as a baby, but wasn't diagnosed with epilepsy until she was six. Now 16, epilepsy has not stopped Rebecca enjoying life.
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Christine and Darrell Walker have three children - Darrell and the three children each have epilepsy, all at different stages and levels of severity. Youngest son Ronan's is the most severe.
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Florence Melling, from Kyneton, says epilepsy has played a dominating and significant part of her life. However, after 27 years of living with severe epilepsy and being fearful, dependent and housebound, she is now an independent person who drives, is a devoted grandmother and a valued contributor to the community. She is...
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Emma Corfe who has epilepsy, and her dad, Jeff (Joffa), share a love of the Magpies and a passion for doing something to change community perceptions about epilepsy.
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After two surgeries, Gabrielle Poustie knows she will never be seizure-free. But that hasn't stopped her helping others with epilepsy as she continues her involvement in the local support group.
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Five-year-old Rosalie Forno has Myoclonic-Astatic Epilepsy, or Doose Syndrome, an early childhood epilepsy syndrome which is often resistant to medication and difficult to treat.
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Like many people who have gone through life seizure-free, Roger Smith had no signs of epilepsy until his late 40s.
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Jane Shearwood had a severe cycling accident in May 2008, resulting in a traumatic brain injury and post-traumatic epilepsy, but three years later she is getting on with life.
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Ryan Hulland was just nine months old when he was diagnosed with epilepsy. Now six, he has Dravet Syndrome, and his parents are learning to live with his uncontrollable epilepsy.
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Six-year-old Joshua Hewson has epilepsy, as well as autism and mutism. Mum Judy says knowledge, research and, these days, a more relaxed attitude, help in taking care of Joshua.
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