Social Research & Policy Reform

SOCIAL RESEARCH & POLICY REFORM

The Epilepsy Foundation is undertaking an applied research program designed to investigate the psychological and social consequences of epilepsy.

This includes service delivery evaluation and research to provide an evidence base for the services that we and others provide, and policy reform and review to ensure systemic change and group advocacy for people living with epilepsy at all levels of government and in the community.

The World Health Organisation has stated that the “social consequences of epilepsy are often more difficult to overcome than the seizures themselves”. The results of our research will help us provide a better service and assist us in lobbying government for improved outcomes for Australians living with epilepsy.

 

Research Participant Register

We are creating an important register of people living with epilepsy, and those caring for people living with epilepsy, who are willing to be occasional participants in future research projects.

This is not medical or clinical research but will likely involve surveys and group discussions designed to find out more about the social consequences of epilepsy. 

All research carried out by the Epilepsy Foundation is confidential and anonymous. You can register by clicking here.  

By registering you are only saying that you might be able to spend a few minutes to a couple of hours of your time over the next year or two. There is no obligation to take part in any of the research studies offered to participants. 

For more information contact: 

Pat McGuirk

Tel: (03) 9805 9111

Email epilepsy@epilepsy.asn.au

 

Click here to view our current Social Research Projects.

 

 

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