SOCIAL RESEARCH & POLICY REFORM
The Epilepsy Foundation is undertaking an applied research program designed to investigate the psychological and social consequences of epilepsy.
This includes service delivery evaluation and research to provide an evidence base for the services that we and others provide, and policy reform and review to ensure systemic change and group advocacy for people living with epilepsy at all levels of government and in the community.
The World Health Organisation has stated that the “social consequences of epilepsy are often more difficult to overcome than the seizures themselves”. The results of our research will help us provide a better service and assist us in lobbying government for improved outcomes for Australians living with epilepsy.
Research Participant Register
We are creating an important register of people living with epilepsy, and those caring for people living with epilepsy, who are willing to be occasional participants in future research projects.
This is not medical or clinical research but will likely involve surveys and group discussions designed to find out more about the social consequences of epilepsy.
All research carried out by the Epilepsy Foundation is confidential and anonymous. You can register by downloading the registration form and forwarding it to the address provided or alternatively contact our Principal Social Researcher on the number below.
By registering you are only saying that you might be able to spend a few minutes to a couple of hours of your time over the next year or two. There is no obligation to take part in any of the research studies offered to participants.
For more information contact:
Dr Jaya Pinikahana
Tel: (03) 9805 9111
Email epilepsy@epilepsy.asn.au
Click here to view our current Social Research Projects.
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We are looking for approximately 150 volunteers over the course of the carnival, starting on Saturday 18th September through to the BMW Caulfield Cup on Saturday 16th
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