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Welcome to The Epilepsy Foundation |
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WELCOME TO THE EPILEPSY FOUNDATION
The website of the Epilepsy Foundation of Victoria, Australia. Our site contains information on all aspects of epilepsy, for people living with epilepsy or if you involved in the care or development of a person who is living with epilepsy. Our hope is that all Australians living with epilepsy, as well... more...
http://www.epinet.org.au/
Organisations, schools, medical professionals and others who wish to refer to the Epilepsy Foundation, or who need to pass on a person's personal information in relation to their epilepsy or their child's epilepsy, either to the Foundation or to another entity, can use the Authority to Release Information form to gain permission.... more...
http://www.epinet.org.au/default/release_of_information_form
The Epilepsy Foundation of Victoria provides a state-wide service headquartered in Melbourne with a regional office located in Geelong and outreach services to other regions. Head Office Address 818 Burke Road, Camberwell Victoria 3124 Telephone: (03) 9805 9111 begin_of_the_skype_highlighting (03) 9805 9111 end_of_the_skype_highlighting HelpLine: 1300 852 853 begin_of_the_skype_highlighting 1300 852 853 end_of_the_skype_highlighting (Aust.... more...
http://www.epinet.org.au/contact_us/contact_epilepsy_foundation_of_victoria
The Epilepsy Foundation of Victoria provides support for people living with epilepsy and their families to help them live better lives. Our services include information, advice and support, epilepsy counselling and practical assistance, as well as education and training, research and advocacy on behalf of people with epilepsy. We work... more...
http://www.epinet.org.au/default/who_are_we
Understanding Epilepsy Up to 10 percent of people will have a seizure at some time in their life. For most, this will be a single isolated event, but others will have more seizures and so will eventually be diagnosed as having epilepsy. Epilepsy varies from person to person, so... more...
http://www.epinet.org.au/default/epilepsy__you
... http://www.epinet.org.au/articles/epilepsy_and_your_lifestage
Menstruation Intimate relationships and sex Can sexual activity provoke seizures? Contraception and AEDs Epilepsy and Women For women with epilepsy, many issues arise over their lifespan. Young woman may have concerns regarding menstruation and seizure control and as you discover your sexuality there may be concerns about forming relationships and... more...
http://www.epinet.org.au/default/women_and_epilepsy_1
About medication What triggers epilepsy? Is there a stigma with epilepsy Epilepsy and the teenager years Epilepsy is the most common neurological disorder of adolescence with an estimated prevalence of around 1 per 100 in children aged 14-16 years. Many children diagnosed with epilepsy will have it throughout their lives... more...
http://www.epinet.org.au/default/adolescents_and_epilepsy_1
Caring for a person with epilepsy Behaviour Information for carers back to top ↑ Caring for a person with epilepsy The experience of epilepsy for the caregiver is not an easy one, especially for those who have a child, partner or parent with epilepsy that is not yet controlled. Many... more...
http://www.epinet.org.au/default/are_you_a_carer_1
Safety Personal alarms Dosette boxes Epilepsy and older people Growing old has many challenges: growing old with a diagnosis of epilepsy is a challenge in itself. Epilepsy is a challenge that can be managed. Coming to terms with a diagnosis of epilepsy, accepting you have seizures and having to take... more...
http://www.epinet.org.au/default/older_people_and_epilepsy_1
Having children Pre-pregnancy counselling Unplanned pregnancy Inheritance of epilepsy Pregnancy and AEDs AEDS and the developing baby Pregnancy and seizures Labour and delivery Motherhood Breastfeeding and AEDs Keeping baby safe Talk about your epilepsy to your child Menopause back to top ↑ Having children Most women with epilepsy can bear... more...
http://www.epinet.org.au/default/pregnancy_1
If you are a male with epilepsy Men and compliance What happens if you stop or reduce your tablets? Supply is a key issue Alcohol and recreational drugs Is marijuana as good for seizures as many people claim? Self-image Driving Sport Being a good provider Sex Safety in the home... more...
http://www.epinet.org.au/default/men_and_epilepsy_1
Childhood epilepsy can be challenging Does your child have epilepsy? Diagnosis of your child's epilepsy Will epilepsy affect learning? Will epilepsy affect behaviour? Explaining epilepsy to your child Nurturing self-esteem in children Your child's activities Your feelings as parents Children understanding epilepsy Building on their strengths Your child's relationship with... more...
http://www.epinet.org.au/default/children_and_epilepsy_1
INSERT PDF OF BABYSITTER'S GUIDE Babysitter's guide Babysitting a child or children with epilepsy is usually no different to babysitting any other child. It is important to always treat the child with epilepsy the same as any other child for whom you might be caring. It is possible that the... more...
http://www.epinet.org.au/default/are_you_a_babysitter_1
What conditions cause epilepsy and intellectual disability? Does epilepsy cause intellectual disability? Range of seizures found in people with IDs Does a person with an ID know the seizure is about to occur? What about medications? Does epilepsy ever make the intellectual disability worse? Will the epilepsy change as the... more...
http://www.epinet.org.au/default/people_with_disabilities_1
Australian Antiepileptic Drug Pregnancy Registry Australian Antiepileptic Drug Pregnancy Registry For women with epilepsy the risk of birth abnormalities is 4-6 percent – double the risk (2-3 percent) that exists in the general population. Is this increased risk caused by the effects of their seizures, the drugs or combinations of... more...
http://www.epinet.org.au/default/pregnancy_register_2
NEW Epilepsy Management Plan (EMP) templates now available! The Epilepsy Foundation of Victoria in partnership with Melba Support Services, Scope, Villa Maria and the Department of Human Services under the self-proclaimed One Person, One Plan Initiative have developed an EMP that suits the unique needs of supporting a person living... more...
http://www.epinet.org.au/articles/epilepsy_management_plan__support_package
Below is a series of Fact Sheets, in pdf format, on various topics relating to epilepsy. You can download and print these as required. We will be adding to this list over time. If you would like any further information on these topics, or any other issues you may have, please... more...
http://www.epinet.org.au/default/fact_sheets
When a person with epilepsy understands their condition and is involved in the development of their Epilepsy Management Plan, there are many benefits for the individual The Epilepsy Foundation runs a variety of general information sessions as well as targeted specialist training sessions. For more information on any of the... more...
http://www.epinet.org.au/default/education__resources_for_people_living_with_epilepsy
Medical and Health Professionals can refer clients to the Epilepsy Foundation. To make a referral, please download and complete the form below, then follow the instructions for forwarding the form to the Foundation. Complete electronically Referral form (Word document) - download and complete this form electronically (you can print and... more...
http://www.epinet.org.au/default/referrals
The Epilepsy Foundation of Victoria provides support for people living with epilepsy and their families to help them live better lives. Our services include information, advice and support, epilepsy counselling, case management and practical assistance, as well as education and training, social and psychological research and advocacy for and... more...
http://www.epinet.org.au/articles/our_services
Professionals and Workplaces The Epilepsy Foundation of Victoria provides epilepsy education and training workshops to a broad range of professionals, including: · Disability and community care support workers, supervisors and assessors · Nurses · Aged Care workers Workplaces · Government, such as Centrelink Job Capacity Assessors · Employment Services, such... more...
http://www.epinet.org.au/employment/training__resources_for_professionalsworkplaces
Organisations, schools, health professionals and others who need to pass on a person's personal information regarding their epilepsy or their child's epilepsy, either to the Foundation or to another entity, can use the authority form below to do so. Complete electronically Authority to Release Information form (Word document) - download... more...
http://www.epinet.org.au/default/release_of_information_form_1
NEW Epilepsy Management Plan (EMP) templates now available! The Epilepsy Foundation of Victoria in partnership with Melba Support Services, Scope, Villa Maria and the Department of Human Services under the self-proclaimed One Person, One Plan Initiative have developed an EMP that suits the unique needs of supporting a person living... more...
http://www.epinet.org.au/articles/epilepsy_management_plan
Medical and Health Professionals can refer clients to the Epilepsy Foundation. To make a referral, please download and complete the form below, then follow the instructions for forwarding the form to the Foundation. Complete electronically Referral form (Word document) - download and complete this form electronically (you can print and... more...
http://www.epinet.org.au/default/referrals_1
Please join us in making a difference by making a donation. Donate online through our secure server Print off and complete the donation form and either fax it to us on 03 9882-7159 or Mail it to Epilepsy Foundation of Victoria, 818 Burke Road, Camberwell Vic 3124 Go Purple 26... more...
http://www.epinet.org.au/default/supporting_us
Watch this space for details of our next Raffle that starts on 14th May 2012 Raffle 64 was Drawn at 3pm on Thursday April 19th. RECESSION BUSTER RAFFLE Buy online through our secure server OR – Print out and complete the Order Form and either fax to: (03) 9882 7159 or mail to: REPLY PAID... more...
http://www.epinet.org.au/default/recession_buster_raffle
RAFFLE 64 Permit No 10112/12 Drawn 19/04/2012 at 3pm Main Draw 1st Prize - $30,000 Coles Myer Gift Card - Ticket No 149393 – N VK of Aspendale 2nd Prize - $1,000 Coles Myer Gift Card - Ticket No 147917 – R L of Elsternwick 3rd Prize - $ 500 Coles Myer... more...
http://www.epinet.org.au/default/raffle_results
Support one of these events * Do you Run or Walk then on July 17 it is Run Melbourne register now and support the Epilepsy Foundation. * Ride 4 Epilepsy www.ride4epilepsy.com.au 16 September 2012 at Calder Park Raceway. Unique opportunity for cyclists of all abilities. Great preparation for Round the Bay.... more...
http://www.epinet.org.au/default/support_an_event
You can change the lives of People Living With Epilepsy. While our hope is that you all have a truly happy, healthy and prosperous lives we would like you to consider what you could do to help all Australians living with epilepsy. There are many ways you can help:... more...
http://www.epinet.org.au/articles/get_involved
Thank you for wanting to support the Epilepsy Foundation of Victoria. Events can be big or small, how much you raise is not as important as having a successful and enjoyable event. Your events combined with those of others are what allows us to change the lives of people... more...
http://www.epinet.org.au/articles/community_fundraising
Join the Epilepsy Champions Club – Your commitment to a regular donation The Epilepsy Champions Club is a regular giving program that provides the option of arranging pre-authorised payments each fortnight, month, quarter, half yearly or even yearly. For as little as $10 a month, your regular support will... more...
http://www.epinet.org.au/articles/epilepsy_champions_club
When someone close to us dies, we experience grief, sadness and, ultimately, an appreciation of all memories we have of that special person. An In Memory Donation to the Epilepsy Foundation of Victoria is a special way to remember someone, and at the same time help give hope and... more...
http://www.epinet.org.au/default/in_memory_giving
Workplace giving or payroll deductions are a simple and effective way for employees to donate to the Epilepsy Foundation of Victoria on a regular basis. Put simply, under a workplace giving program, your donation is deducted from your monthly (or fortnightly) pay and is sent to the Epilepsy Foundation of... more...
http://www.epinet.org.au/default/workplace_giving
Thank you for your interest in including a bequest to the Epilepsy Foundation of Victoria in your will. It is important that the bequest is worded correctly and the following is recommended as a guide. You may wish to give this wording to the legal practitioner who is preparing... more...
http://www.epinet.org.au/default/making_a_bequest
Goods Needed You can help by donating your preloved belongings to our Epilepsy Op Shops. (Please Note all goods need to be in a good saleable condition). Donations are welcome at any of our stores or Head Office. If you would like goods collected ring our Op Shop Truck on... more...
http://www.epinet.org.au/articles/epilepsy_op_shops
membership form Benefits of EFV membership Member discount on items sold by the Epilepsy Foundation including books, aids, videos and other epilepsy related materials. Significantly reduced registration fees and booking priority for a wide range of workshops and seminars. Eligibility to vote at AGM and Special Members meetings. Eligibility to... more...
http://www.epinet.org.au/default/become_a_member
Volunteers at the Epilepsy Foundation of Victoria are an invaluable and vital part of our organisation. Some of the areas where volunteers are needed are: · Opportunity Shops (Located in Kew, Blackburn, Parkdale and Cranbourne) · One-off activities throughout the year (for example Trivia Challenge) · Education Programs... more...
http://www.epinet.org.au/default/volunteering
Our Stories - Our Clients, their Families & our Supporter stories. There are many stories around epilepsy but at the heart is the person living with epilepsy and their families. These are the stories of our clients who have generously and courageously agreed to share their lives with you.... more...
http://www.epinet.org.au/default/stories_-_clientssupporters
Death in epilepsy is a confronting and sensitive topic that people with epilepsy, their families, carers, and health professionals alike, are reluctantly faced with acknowledging and addressing. It is not a topic we discuss in this newsletter lightly or with any ease. We do so to highlight the global discussion... more...
http://www.epinet.org.au/default/client_stories_-_sudep__epilepsy_deaths
The Epilepsy Foundation can provide a broad range of information and resource materials through its extensive library and information service. Help can be provided over the phone, in person or via mail and e-mail. A summary of what we can provide is listed below: provision of up-to-date information and... more...
http://www.epinet.org.au/default/information_library__resources
First Aid Brochure Amharic Amharic 2 Arabic Bosnian Bosnian 2 Cambodian Cambodian 2 Chinese Croation Dari Greek Italian Italian 2 Japanese Japanese 2 Macedonian Persian Polish Russian Serbian Somali Somali 2 Spanish Turkish Vietnamese EFV Services Amharic Arabic Bosnian Cambodian Cantonese Chinese - Simplified Chinese - Traditional Croatian Dari... more...
http://www.epinet.org.au/articles/multiple_language_information
The Epilepsy Foundation Library collection is a source of diverse information supporting a wide range of clients, including people with epilepsy, carers, children, medical and health professionals and the wider public with an interest in the epilepsy. The collection comprises more than 2,600 books and audio visual materials, complete holdings... more...
http://www.epinet.org.au/articles/library
The Epilepsy Foundation is undertaking an applied research program designed to investigate the psychological and social consequences of epilepsy. This includes service delivery evaluation and research to provide an evidence base for the services that we and others provide, and policy reform and review to ensure systemic change and group... more...
http://www.epinet.org.au/default/social_research__policy_reform
Research Participant Register We are creating an important register of people living with epilepsy, and those caring for people living with epilepsy, who are willing to be occasional participants in future research projects. This is not medical or clinical research but will likely involve surveys and group discussions designed to... more...
http://www.epinet.org.au/articles/social_research_projects
Latest News Media Releases Media Resources Reports - includes Annual Reports, research findings, government reports Events ... more...
http://www.epinet.org.au/default/news_media_reports_and_events
Media releases MR Keeping Epilepsy in Mind 20.9.11 MR Joffa's Ride to Footy Park SA for Epilepsy 29.7.11 MR Epilepsy Awareness Week 2011 MR Trivia Challenge Winners Announced 3.12.10 MR Pin & Win Caulfield 13.9.10 MR Colac Support Group to Meet 27.5.10 MR JECA - Epilepsy Inquiry Recommendations Released 29.3.10... more...
http://www.epinet.org.au/articles/media_releases
Annual Reports 2010 - 2011 Annual Report 2009 - 2010 Annual Report Service Highlights Annual Report Financial Accounts 2008 - 2009 Annual Report Service Highlights Annual Report Financial Accounts 2007 - 2008 Annual Report... more...
http://www.epinet.org.au/default/reports
Consumer Backgrounder - Keeping Epilepsy in Mind (September 2011) Media Backgrounder Media Backgrounder brief version Seizure First Aid The Language of Epilepsy Top 10 Tips for Living with Epilepsy (Short Version) Top 10 Tips for Living with Epilepsy Where to get help... more...
http://www.epinet.org.au/news/media_resources
IMPORTANT ANNOUCEMENT Dear Trivia Challenge Co-ordinator I am writing to thank you and your school community in its support of Trivia Challenge. The Trivia Challenge program has run in Victorian Schools for more than 16 years and we appreciate the time, energy and enthusiasm many teachers, parents and students have... more...
http://www.epinet.org.au/default/trivia_challenge
In Touch with Epilepsy - Autumn 2011 pdf version Purple Day 26th March; The wisdom of nine; The game is just starting for Joffa; Get Epilepsy Smart Quiz; $100,000 and running; Pin & Win a winner; Melbourne Storm joins as a Purple Partner; Christmas Giving - Thank You; Raffle results... more...
http://www.epinet.org.au/default/in_touch_newsletter
Roger and Glenys Coates speeches at the 2010 Epilepsy Memorial Service Glenys Coates Seven years ago David died. We had enjoyed a happy family dinner on the Friday night and, after his cheesy grin and all enveloping bear hug he said goodnight. Little did we know it would be the... more...
http://www.epinet.org.au/default/roger_and_glenys_coates
Terms and Conditions This site is provided “as is”. EPILEPSY FOUNDATION OF VICTORIA makes no express or implied warranties or representations as to the operation of the site or the content, information or materials on the site. You expressly agree that your usage of the site is at your sole... more...
http://www.epinet.org.au/default/terms_and_conditions
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